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Chronic fatigue & feeling unwell Options
elainetomo
#1 Posted : Friday, September 20, 2013 11:43:58 AM Quote
Rank: Newbie

Groups: Registered

Joined: 9/6/2012
Posts: 1
Hi, I'm feeling so down recently as I feel my disease is affecting my life greatly. I am struggling with work, I run my own business, as I don't have the energy to do what I need to do and so i am struggling financially, which adds to my frustration. I do try and pace myself but I'm so incredibly tired and my legs feel like lead weights. I hate feeling like this as I've always been a very active person but I am so exhausted all the time, I could sleep on the edge of a razor blade!
I'm sorry for moaning but I don't know how to feel better or what to do. I've tried to keep active but it's proving to be difficult. I am determined this damned disease does not get the better of me but its an uphill battle.
My bloods have been fine over the past few months but the fatigue and flu like feeling is still there, and im so sore in the morning for ages, why is that? Any advice or help would be gratefully received, Elaine x
Paul Barrett
#2 Posted : Friday, September 20, 2013 12:57:37 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 4/24/2013
Posts: 703
Location: Hexham
Hi Elaine,

You come to the right place to have a moan. That's one of the prime benefits of this forum - the ability to let off steam to a group of people who completely understand where you're coming from.

The problem with fatigue is that it can come from so many places. First of all the disease itself will cause fatigue as your body fights the inflammation. Second, many of the medications that we are given for the disease will also cause fatigue. And if that's not bad enough, the disease can also cause anaemia, which will make you feel tired, as well as vitamin D deficiency which, guess what, will make you feel tired.

There's also a possibility that you are suffering from a degree of depression, the symptoms of which are very similar to the fatigue you are feeling. RA can be particularly troublesome in the morning. A lot of people report inability to get going, and if you are suffering from depression mornings can be particularly trying. They are for me.

So, there is a vast array of reasons why you might be feeling the way you're feeling. You need, at least, to talk to your GP. Blood tests for anaemia and vitamin D deficiency might be useful. And you can talk about the general state of your health, physical and mental.

The thing to bear in mind is that it does get better but it is also very different for each person and you have to work out the strategies that work for you. It sounds to me like starting with your GP would be appropriate; and follow-up with your Rheumy nurse (if you have had one allocated).
Paul Barrett

Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)

Enthesitis (2012)
Ulcerative Colitis (1990)
Angiecha
#3 Posted : Tuesday, September 24, 2013 12:57:59 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 9/5/2010
Posts: 185
Location: Lowestoft, Suffolk
Perfect answer Paul ThumpUp

Hi Elaine

The fatigue was a real battle for me too. I'm much better now due to amiltryptilene and One-Alpha (vitamin D). Always hard getting up in the morning (snooze x 5 today) due to fatigue and stiffness.

You aren't on your own, loads of us have gone through it and come out the other side, not cured but improved. Takes time though.

What sort of work do you do?

Angie
Be yourself - everyone else is taken. XX
suzanne_p
#4 Posted : Tuesday, September 24, 2013 7:04:29 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 8/25/2010
Posts: 1,289
Location: Buckinghamshire
hi Elaine,

sorry to hear how unwell you are feeling.

fatigue is the biggest thing for me, my RA is under control.

but i am not the best of sleepers and i know that causes my fatigue generally, but as i have posted before on this forum when i first joined i felt like i had lost my Va Va Voom.

i am also wondering if you are feeling a little depressed? that would bring fatigue on like a ton of bricks .. do you think a trip to your GP would be a good idea. that's who i always run to first. Paul hsa given some good idea's.

i appreciate how difficult it must be for you having to struggle work wise, i fortunately don't have that to worry about.

come back and let us know how you are,

Suzanne
crazychick
#5 Posted : Friday, October 04, 2013 6:02:37 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/6/2009
Posts: 177
Hi Elaine

Sorry to hear you are feeling so tired. As the others have said depression could be a factor and also RA does makes you so tired. I have trouble getting up in the morning and today for instance i got up at 8am made a coffee went back to bed to drink it and next thing i knew it was 2.30pm! Happens to me a lot!

Visit your GP for some advise. Maybe you are a bit aneamic.

Take care and hope you feel better soon.

Love Shirley x
lisamcb
#6 Posted : Friday, October 04, 2013 7:21:06 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 3/8/2013
Posts: 144
Location: Dumfries
Hi Elaine,

I am definitely with you on this one - fatigue and the flu like feeling is a right royal pain in the bum!! I keep thinking I am coming down with something then bingo I remember no it's the dreaded RA. Don't feel bad for moaning as this is a grand place to off-load. You say you run your own business, do you have anyone who can help you out when you are feeling so bad? How often do you get to see your Rheumatology Team? Please keep in touch and let us know how you are getting on.


Take care

Lisa xx
philhughes
#7 Posted : Sunday, October 06, 2013 11:38:50 AM Quote
Rank: Newbie

Groups: Registered

Joined: 12/5/2009
Posts: 5
I am another one for whom the fatigue is currently the worst aspect of RA. My inflammation is well controlled, but it seems nothing can be done for the fatigue. I too find it very difficult to get going in the morning. I'm on hydroxy which is supposed to help, but if it does, it is not a lot. I feel this aspect of the disease is a bit neglected and really wish more attention was paid to it.

Phil
Jane.
#8 Posted : Sunday, October 06, 2013 10:53:38 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 5/2/2012
Posts: 670
Location: where the sun always shines :o
Hello Elaine

Ra plays us up......we have to find our ways of adapting.
Sorry you come to the forum, but you will meet many happy friendly people to share their stories, knowledge and humour!

NRAS have leaflets/info to read up on - type fatigue in the search field.

I bought a book at the beginning on amazon and read it now and then -arthritis for dummies - good read.

http://www.amazon.co.uk/...ah-Brewer/dp/0470025824

housework tough? Just do little at a time, and don't get hung up on what you can't doThumpUp

I've had ra since 2007 and now on anti tnf's injections and recently had knee replacement (I'm 41) but ra effects us all differentlyLOL RollEyes

Take care
Jane
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